Headache on the Hill

Headache on the Hill: Building Advocates and Community

Headache on the Hill is a flagship program held twice a year jointly by The Headache Alliance (THA) and our sister organization, the Alliance for Headache Disorders Advocacy (AHDA). The event occurs virtually in the fall and in-person in Washington, D.C., each spring. It is the only event of its kind within the headache community, bringing together patients, providers, caregivers, and researchers from across the country for one signature experience.

A Comprehensive Advocacy and Education Program

The Headache Alliance selects diverse cohorts of participants, including patients, caregivers, healthcare providers, and researchers, to join Headache on the Hill. THA provides civics education, advocacy training, and professional development to equip advocates with the knowledge and skills needed to effect change. This includes fostering community through affinity groups for BIPOC, LGBTQIA+, and youth participants, along with tailored workshops that blend art, science, and civics to empower the next generation. In partnership with AHDA, which leads Congressional engagement, THA focuses on the broader educational and community-building aspects of the program.

What To Expect

Headache on the Hill is a multi-day experience designed to educate, empower, and connect advocates from across the country. Participants engage in a variety of activities that go beyond federal advocacy, focusing on holistic support, education, and community building. Key aspects include:

Celebration of Achievements: The event culminates in a celebratory awards dinner, honoring the dedication and accomplishments of the headache advocacy community.

Education and Training: Comprehensive civics education and advocacy training equip participants with the skills and confidence to become effective advocates. Workshops focus on legislative processes, strategic communication, and impactful storytelling.

Youth Programming: Tailored workshops for children blend art, science, and civics education, creating a welcoming space for young advocates to connect, learn, and grow. This programming serves children living with headache disorders, siblings, and those whose parents are affected.

Community Building: Affinity groups for BIPOC, LGBTQIA+, and youth participants foster meaningful connections and ensure a supportive, inclusive environment for all attendees.

Wellness Activities: Recognizing the importance of self-care, the program incorporates wellness activities to support participants’ mental and physical health during the event.

Federal Advocacy: Advocates are grouped into state teams to collaborate and prepare for meetings with Congressional representatives, presenting impactful, community-driven requests (or “asks”) that address critical issues facing the headache community.